Resources

You'd be surprised how much information & assistance is out there to help us in our illness and circumstance. My background in social work has prepared me to better gather legitimate and helpful resources and avoid gimmicks and unproven products.

As mentioned by the wonderful "hostess with the mostest", Jami of the Chronic Hope Podcast, this is a great option for finding research on your illness that can then be taken in to your next doctor's appointment. Here is what's available on Fibromyalgia specifically.

I can't say enough great things about this site! They have a plethora of info from the science of Fibro (for nerds like me who dig deep into the research), support groups listings, and other resources. My favorite part of their site is straightforwardly titled, What is Fibromyalgia?

This is an AMAZING non-profit that focuses on programs for patients, medical            education, expansion of research, and advocacy education.

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  • Lyrica Financial Assistance​​
    ​If you can’t afford your prescription, Pfizer Patient Assistance can either lower your cost or mail you a 3 month RX for free if your doctor signs off and you qualify financially.

  • Iyengar Yoga
    A style of yoga that feels like it was created for people with disabilities, serious injuries, and/or mobility issues.

    ​​Learn more about Iyengar Yoga and how it works wonders for us with disabilities here. Find a class or teacher here.

  • ClinicalTrial.gov
    This web site under the National Institute of Health​ (NIH) and the U.S. National Library of Medicine contains a searchable database of clinical trials looking for volunteers in the U.S. and the rest of the world. ​

    Click here to search for studies near you.

 

  • Fair Housing Act and Assistance Animals
    This includes your right to have an emotional assistance animal despite a building/rental home's rules on pets with NO pet fees.

    ​Find more information on what you need to provide to your landlord and what to do if they refuse here.

     

  • National Fibromyalgia Association (NFA)
    "The NFA will always be the community’s “advocate.” As a non-profit, the NFA has continued to act on behalf of the patients, making sure they have a voice and ways to build awareness, and as a long standing, reputable organization that has the credibility to ensure that the patients’ needs are communicated and met." -fmaware.org

© 2020 Talia Miele.